Ok. Here it is. The big wrap up of the past couple of months. As you know, we had a baby. Alex. Hi Alex! Alex has Spina Bifida. Oh well, not much can be done about that, and that's a reality that we've become comfortable with. This fact is made much more digestible by how absolutely amazing Alex is. Legs kick. Feet flex. Toes wiggle. His brain and spinal cord is healthy, developing normally at this point, and will hopefully continue to do so. He's awesome. Yes, spending two and a half months in the hospital with two spinal surgeries, plenty of IV's and antibiotics, feeling unbelievably lonely and just alone (these are two very separate things I've learned), worried over C driving back and forth and not falling asleep and dying, etc: SUCKED. At the same time, I'm so very aware of how lucky we were to be able to have the IWK to go to, the amazing people who work there, and the support of my family and all back home who made it possible for us to actually survive this intact.
Really, truly, we're pretty damn lucky all around.
We had our first Spina Bifida Clinic in early October: what a loooong day. I'm glad I was able to convince those involved to go over the night before and spend the night at a hotel in order to make it for the next day. Plus I got to shop. Cause that's important. MRI, Ultrasound, X-ray, Uro-dynamics, Orthopedics, Neurosurgery...the list went on. Lots of consults, lots of tests. Lots of positives from the doctors reading the reports, one or two things to keep an eye on, and overall not too much to worry about. Still on the bright side, they don't want to see us for 6 months!! Usually I'm pretty sure it's an every 3 months for the first year +, then they slow down a bit. Yay for us!
So; while a little bit of reflux to his left kidney is something we'll need to take a low dose antibiotics for, we're doing very well.
We laugh
We smile
We sing
We get licked by the dog
We wail
We scream
We get woken up by the chicks that ridiculous me decided to try and save so they live in the house.
I realize that's something I have to work on. I'm working on it, really!